Physicians, nurse practitioners, nurses,
psychologists,
physical therapists, and a whole host of other health care professionals
entered their respective professions to help people. One part of being an
effective health care provider is to advocate for your patient when they need
it. If your patient (who is a mechanic) broke his arm and needs a
note for the employer for a few weeks off, you provide it. If your pediatric
patient (who suffered a severe traumatic brain injury) needs you to write a
note regarding academic accommodations, your write it. If your stroke patient
needs you to write a letter of medical necessity to the insurance company for
why they need extra physical therapy for rehabilitation of a weak limb, you
write that too. This is just common sense and while it can be seen as advocacy
it is also sound practice.
Where patient advocacy starts to become problematic and can
lead into patient enabling, is when there is: a) a lack of objective biomarkers
to indicate the presence of a pathological physical condition and/or b) the
patient is pursuing some form of compensation (e.g., disability application,
workers compensation claim, no-fault insurance claim, and/or litigation). By
objective biomarkers, this means that there are no significant abnormalities on
blood tests, x-rays, MRI scans, physical exam, or other objective measures. When
a and b are both present, the risk of patient enabling increases significantly.
In such cases, the health care provider is often left to
diagnose, treat, and manage the patient based purely on subjective
symptoms. The
provider may also be asked to fill out disability paperwork (even on the first
visit), fight insurance company denials for expensive tests, and be asked to
refill pain medication prescriptions. While it may be easier to go along with
these requests, if you are a healthcare provider how do you know that the
patient is not exaggerating their presentation, that you are actually treating
the true source of the problem, that you are not causing more harm than good in
the process, that you are not enabling abnormal illness behavior, and that you
are not enabling someone’s financial goals as opposed to medical treatment goals?
This is a topic that rarely commented on in clinical notes
or discussed with the patient. There are several reasons why this is the case,
including but not limited to: a) an automatic proclivity among some providers to
believe subjective symptom reporting is accurate based on a belief in the
inherent truthfulness of others, b) a belief that reinforcing and “validating”
symptoms helps the patient feel like someone cares and is thus more important
than questioning if the symptoms are accurate, c) helping patients is equated
to prescribing and ordering diagnostic tests targeted to each specific symptom,
d) not realizing that the presentation may be exaggerated by failing to
integrate evidence-based research findings into case conceptualization, e) not
utilizing objective measures of treatment progress (or lack thereof), f) fear
of complaints and litigation, g) it takes too much time to address, and h) not
realizing that there are ways to more objectively and comprehensively evaluate
exaggeration.
As a caveat to this discussion, I want to be clear that
there are patients with only subjective symptoms who may have a genuine medical
problem that objective tests did not detect. A famous quote about this drives
the point home “absence of evidence is not evidence of absence.” To be more
accurate, however, the phrase should read, “absence of evidence is not always evidence of absence.” This is
because many times a medical test is negative because there really is nothing
medically wrong. In other words, many times, “absence of evidence actually is
evidence of absence.”
This post should not be read to imply that patients with
subjective symptoms, negative objective test results, and who are pursuing
compensation should not be treated and advocated for. These types of decisions will
always depend on the specifics of the particular case. However, in general, health
care providers need to exercise much greater caution in such cases than in the
ones described in the first paragraph.
A few tips are as follows.
1) Use
objective measures of treatment progress and require/request this of others who
you refer the patient to for treatment. If the patient is not improving with a
certain plan of care, it is time to change direction rather than continuing the
same treatment for months to years. You may be surprised to find when doing
this that the patient is actually reporting worse symptoms over time. If so, it
is time to consider why and change course.
2) Consider
if the patient’s presentation significantly exceeds what would be expected
based on scientific knowledge of the condition. If the presentation is not
biologically plausible, it is time to consider a psychological explanation for
the presentation, reexamine the diagnostic impressions, treatment, and advocacy
efforts.
3) Do
not feel compelled to immediately fill out disability paperwork or other
paperwork supportive of compensation requests without having some data to
support your position. If a physical limitation is described as disabling,
refer the patient for a functional capacity evaluation. If the patient claims
cognitive impairment, send the patient for a neuropsychological evaluation so
the role of psychological factors can be explored. These types of evaluations
can provide very useful information about the reliability and validity of the
patient’s symptoms that is based on objective data and supported by
peer-reviewed research.
4) Use
data from the above evaluations to help guide decision making. For example if
you find out the there is overwhelming evidence that the patient’s presentation
is exaggerated, malingered, and/or caused by psychiatric as opposed to
neurological problems, it is time shift the care to a psychiatric focus and
only treat physical symptoms that can be objectively verified.
5)
Consider
the possible harmful effects of continued treatment without employing
reliability and validity checks. For example, if you are treating a
non-existent attention problem with a neurostimulant you can be raising the
patient’s blood pressure to dangerous levels. If you are keeping patients in
physical therapy for gait imbalance who are not improving and who have a
non-physiological gait pattern, you are restricting access to care for patients
with genuine medical problems who need the service. The same applies for
ordering diagnostic tests (e.g., CT scans which expose patients to radiation) that
have very little chance of yielding any new information given what is already
known about the case.
In sum, health care providers best
help patients by using objective data to guide case conceptualization,
treatment, and advocacy efforts. Sometimes, you need to be skeptical, sometimes
you need to say no, sometimes you need to say something the patient may not
want to hear, and sometimes you need to decide and communicate that there is
nothing else you can do. This can all be done in a polite, caring, and
respectful way. It does not mean that you have failed if all of your patients
do not get better. Some will never get better and some do not want to. It’s
just the reality of working in the modern day medical system.